Fairytale Ball in aid of Kissypuppy

Fairytale Ball are raising money for KissyPuppy in memory of the Beautiful Delilah Monaghan. X

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Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Quiz night in aid of KissyPuppy at The Chequres

Charity Quiz night in aid of KissyPuppy at The Chequres Inn, Rookley

Wednesday 15th April 2015 – 7.oopm for 7.30pm start

Teams (up to six people) – £5 per person, inlcudes a buffet

Please book your places early:

Contact Clare:

clairedinsdale@operamail.com

Home: 01983 840192

Mobile: 07875344550

There will also be a raffle on the night and donations gratefully receieved

Quiz

Our Story – The Sophie Rolf Trust – Registered Charity 1156155

www.justgiving.com/Sophie-Rolf-Kissypuppy

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes. Sophie started school in September 2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’. This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor.

Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile. She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories. We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight. There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions. Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family. Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices.

Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families. The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for.

Sophie had already started on her next project, a Playground, within the grounds of the Hospice. In her short life, Sophie has changed Children’s services here on the Island.

We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy ‘The Sophie Rolf Trust’ is now a registered charity. We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight. We hope we can continue Sophie’s good work and make a legacy she would be proud of.

You can donate to this amazing cause via the KissyPuppy – Just Giving page online by clicking on this link.

www.justgiving.com/Sophie-Rolf-Kissypuppy

Donations are very much appreciated and we thank you for your continued support.

If you wish to organise your own fundraising event you can use this just Giving page to set up your own page

https://www.justgiving.com/sophierolftrust/

or by sending cheques payable to Sophie Rolf to

KissyPuppy

2D, The Boathouse

Hurst Point View

Totland

Isle of Wight

PO39 0AW

 

KissyPuppy Bestival Butterfly Competition

KissyPuppy – The Sophie Rolf Trust Bestival Butterfly Competition

Bestival Butterfly Selfie Competition

Win Bestival Tickets!

To celebrate Sophie’s 7th Birthday and the launch of the Butterfly we are giving you the chance to win 2 Bestival 2014 tickets.

Simply take a selfie with your butterfly and email it, with a contact number to kissypuppy@live.com

Butterflies are available from Sophie’s shop for £3

Competition finishes on 31st August 2014

Sophie’s Shop, 22-24 Lugley Street, Newport. Isle of Wight. PO30 5HD

KissyPuppy Comp fin

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

 

Royal Engineers Endurance Challenge for KissyPuppy

The Royal Engineers Trials & Developments Units

Endurance Charity Challenge in aid of KissyPuppy – The Sophie Rolf Trust, ABF The Soldiers’ Charity and Make A Wish.

Royal-Engineers

8 Men – 90 Holes – 4 marathons – 125Miles – 4 ½ days

The Royal Engineers Trials & Development Unit hasorganised a team charity event comprising of anarduous and demanding challenge to raise money for 3different regional, national and millitary charities.  Ourchallenge is for 8 people to complete a marathon perday for 4 days (105 miles) starting each day with a fullround of golf which would take the total distance to 125miles.  The starting point is Slaley Hall, Hexham on the 8September 2014 finishing at St Andrews for our fifth andfinal round on the 12 September 2014.

Please RETD90 £2 to 70070

All in aid of KissyPuppy – The Sophie Rolf Trust, ABF The Soldiers’ Charity and Make A Wish.

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Charity Motorsport Festival for KissyPuppy

Charity Motorsport Festival in aid of KissyPuppy – The Sophie Rold Trust will be on the 30-31st August 2014 at Northwood Showground starting at 10am.

  • IW Car Club Auto Test
  • Live Music and Bar – Sat to 11pm – Sun to 5pm
  • Camping (Sat night)
  • Demonstrations
  • Auto-Jumble
  • Display and Much More …

Donations on the gate…

www.iowcc.co.uk

10505063_10202970818844785_7618680560972913026_o

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

‘Little Island’ for sale at Sophie’s Shop for KissyPuppy

– Little Island – by David Liam Hart

Charity book for The Sophie Rolf Trust – KissyPuppy

Books will be sold at Sophie’s Shop, EMH, Lugley Street, Newport on 28th June 2014

Little Island Poster

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Sydenhams Trade Day for KissyPuppy

Sydenhams Paslode Trade Day for KissyPuppy – The Sophie Rolf Trust

Trade in your old 1st fix nailer and receive £100 off an IM360CI Nailer, trade day deal includes, 1 tool bag, 1 lithium battery and 1 in-car charger.

Monday 30th June 2014

There will also be a raffle and a cake sale. Pizes include a Wigfhtlink Voucher, Wine, a tool bag, £100 spa voucher and more……

Syd Trade Day copy

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Holyrood Street Festival Day for KissyPuppy

Hollyrood Street Festival Day in aid of KissyPuppy – The Sophie Rolf Trust, Beaulieu House and Newport Carnival on Sunday 15th June from 10am to 5pm.

There will be music, bouncy castle, wizard, local shops and stalls, food, ice cream and candy floss.

Holyrood Street Festival Day jpg

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Helping Someone in aid of KissyPuppy

On Saturday 5th July 2014, at 7pm, in St. Mary’s Church, Brighstone there will be a concert for the National Premiere of the charity single Helping Someone.

This concert is FREE ENTRY and is to raise funds for 5 Island charities including KissyPuppy – The Sophie Rolf Trust.

There will be a raffle, an auction for 2 top prizes and refreshments.

The CD of the song will be on sale.

Please see the flyer for further details.

Many thanks Linda Edge x

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Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Newbarn Annual Charity Shoot in aid of KissyPuppy

Everyone is welcome to come and watch or take part in the Annual Newbarn Charity Shoot in aid of KissyPuppy – The Sophie Rolf Trust on Sunday 1st June 2014 starting at 10am. Last entries taken at 12 midday.

Newbarn Farm, Calbourne. (With kind permission from the Spence Family)

80 Bird Sporting

£30 per individual

50 Bird Flush

Pool Shoot

Refreshments available all day.

All ages and abilities welcome

Advanced Booking Essential.

~Fibre Wads Only~

For Further Information Contact Jill on 07943 238632 – Email iowcharityclayshoot@gmail.com

 

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Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy