Sydenhams Trade Day for KissyPuppy

Sydenhams Paslode Trade Day for KissyPuppy – The Sophie Rolf Trust

Trade in your old 1st fix nailer and receive £100 off an IM360CI Nailer, trade day deal includes, 1 tool bag, 1 lithium battery and 1 in-car charger.

Monday 30th June 2014

There will also be a raffle and a cake sale. Pizes include a Wigfhtlink Voucher, Wine, a tool bag, £100 spa voucher and more……

Syd Trade Day copy

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Table Top Sale for KissyPuppy

Table Top Sale for Kissypuppy this Saturday 8th March 2014 from 10am – 2pm at The Salvation Army, Pyle Street, Newport.

Tea, Coffee and Home Made cakes will also be available.

All money raised will be split between their Parent and Toddler Group ad KissyPuppy

Table-Top-Sale-Rae

Sophie Rolf was a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. Through all her therapy Sophie showed great courage and a smile that has inspired all of those around her.

Initially we set up ‘KissyPuppy’ as a mechanism to fund raise for Sophie and her family. Sadly Sophie lost her battle at the end of 2013 but KissyPuppy intends to continue to provide support to children on the Isle of Wight suffering from life-shortening conditions and is now KissyPuppy – The Sophie Rolf Trust.

What this devastating process highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Naomi House in Winchester for specialist respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice (EMH) is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We have been raising funds together with EMH, to create an Island based solution that would support children on the Isle of Wight with life shortening conditions.

The EMH project aims to bring together locally provided and family led palliative care services for children, teenagers and young adults on the Isle of Wight. EMH is working with the Isle of Wight NHS and other local groups, organisations and Island families to make this happen.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, and built around the unique needs of each family. These services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices and will extend to friends and all those involved..

EMH is already setting up a Family Network to bring together Island families who are affected by life shortening conditions and to provide them with help and support through their Information & Support Centre in the John Cheverton Centre.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Cake Sale for Kissypuppy at Sophie’s Shop

Cake Sale at Sophie’s Shop on the 22nd February 2014 from 9.30am all in aid of KissyPuppy – The Sophie Rolf Trust. Please come along and support Sophie’s little cousins Chelsea and Jordan’s cake sale. The girls will be in the shop this day selling cakes and are very excited about their fundraising event. Alongside the cake sale they will also be introducing and selling the new ‘Sophie Bear’.

The main Earl Mountbatten Shop will also be having a massive book sale this day also.

Sophie Shop Cake Sale copy

Charity Spider Ride/Drive to Brickfields for Sophie Rolf

On Sunday 30th September 11am-1pm there is a sponsored charity spider ride/drive to Brickfields for KissyPuppy – The Sophie Rolf fund.

(This is where horse riders and horse and carriage come from anywhere on the island to brickfields making a spider)

It is £6 per horse/rider. A lovely rosette sponsored by The Tack Shack and home made cakes and a cold drink.

Sponsor forms available to print off here SponsorForm

The organisers Elaine Sivell, Lisa Sullivan and Sam Dyer wanted us to let you you know that everyone is welcome.

Sophie Rolf

KissyPuppy

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on theIsle of Wightwith not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

Westview Coffee and Cake Sale

Westview House yesterday held and Coffee Morning and Cake Sale. The staff all paid to wear purple for the day. They had lots of wonderful cakes and a raffle all in aid of KissyPuppy and raised over £260. Sadly Sophie wasn’t able to join in as she was having treatment in Southampton in the morning, but did pop in the afternoon to say thank you.

Festival of Football

“Boys from many of the Island’s U8 and U9 football teams took part in a mini-tournament on Sunday 22nd July, looking to raise funds for Sophie Rolf and the charity KissyPuppy and Brainstrust.

The event was held at West Wight Sports field in glorious sunshine and was supported by a large number of the boys’ families and friends. In the end it was not possible to separate the finalists as both matches were drawn. In the spirit of the day, the decision was made to share the honours, with the U8 winners being the West Wight and Gurnard teams, and the U9 winners, West Wight 2 and Wight Cherries 2 teams. The penalty shoot-out was even more exciting.

Organisers would like to extend their warmest thanks to all those who came and made this such a special day, including all those who played, and to everyone for their wonderfully kind generosity. Taking into account some private donations, including £160 from West Wight Football Club, we were able to raise an amazing £1000 for the charity.”

Coffee Morning and Cake Sale

Sophie’s Day – The theme is purple

We shall be having a coffee morning, cake sale and raffle at Westview House, Ward Road, Totland on Friday 17th August.

KissyPuppy

KissyPuppy

Also hope to get my clients to make some bracelets to sell. The staff will have to pay £2 to have the privilege of wearing purple for the day.