Day 4 of the last 5 days of Chemo and Sophie Rolf has finally given in to the side effects! Not bad only taken her 13 months! Which in its self is an amazing achievement.. Only one more day to go which we wish we were celebrating instead will be nervously awaiting her MRI Scan on Tuesday.
Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.
Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.
Currently, children from the Isle of Wight travel to Naomi’s House in Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.
The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children by 2015.
We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.
The severity of Sophie’s rare condition means that in the interim, a space may be needed to support Sophie and her family in her final days.
KissyPuppy is raising money for the Earl Mountbatten Hospice. This could go towards things like transforming a space into a child friendly residence that would bridge the gap whilst new long term services are developed on the Isle of Wight.
Donations would be very much appreciated and we thank you for your continued support.