POSTFEST 2014 choose KissyPuppy

This year PostFest 2014 is on July 25/26/27 and has chosen to support KissyPuppy – The Sophie Rolf Trust. The line up this year is one not to be missed and with tickets for the whole weekend only £20 or £8 a day it is sure to sell out fast.

On Friday the headline act is the amazing Goldray. Goldray is the project of Reef guitarist Kenwyn House who formed the band in 2010 when teaming up with vocalist Leah Rasmussen (Hydrogen, EMI, Bedrock, Renaissance).

On Saturday the Islands own Plastic Mermaids are the headline act. The Plastic Mermaids sold out their last gig at The Quay Arts in a matter of hours and have had been on the Rob Da Bank and Edith Bowman shows on Radio 1.

Sunday sees the event closed with an 8 piece ska/rock/reggae band from Hampshire called BIGTOPP. From Portsmouth they have a really original sound and are surely destined for bigger things.

Other acts joining these three are a list of some of the best bands and singer songwirters that the Island has to offer at the moment such as; 2nd Time Around, All Washed Up, Bedrock, Cardinal Richelieu, Charming, Claydon Connor, Damien Paul & Band, Duveaux, Floella Grace, Holly Kirby, Jazzy Heath, Jimmys Big Fish, John Wroath, Jones, Jukebox Jazz, Lucid, Naked Fridays, Nils Mason & The Amazing Pudding, Nuberryz, Paul Armfield, Rebel & The Hearts, Signals, Slombers Woke, The Almighty Chancers, The Bear Social, The Nightwatchmen, The Omhz, The Scores, We Almost Were and Weatherkings.

Tickets are available from The County Press Shop, Ticketline and Gold Tone Cafe. For more information go to

www.postfest.co.uk

or on their facebook page

www.facebook.com/POSTFEST.IOW

 

 

postfest final a3 jpeg

POSTFEST 2014

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Blacksheep Bar Gig for KissyPuppy

The Blacksheep Bar and Club Lounge present Any Road, The Dead Perrys, Sam Sheasby, Joe Chillcott, Penny Churchill and North and South on Thursday May 15th at the Blacksheep Bar, Ryde in aid of The Sophie Rolf Trust – KissyPuppy.

Doors open at 7pm

Tickets are £2

This is a 16+ event

The event is going to be a night of original and covered music from island musicians to support a well deserved charity, starting from 7 onward we’re going to have some singer songwriters open up and to finish the night some bands

974326_10203556209204410_681942991_n copy

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Caulkheads Barn Dance for Sophie Rolf

Island Band ‘The Caulkheads’ are having a ‘Barn Dance’ in aid of KissyPuppy – The Sophie Rolf fund.

On Friday 3rd May 2013 at Wootton Community Centre come along and join the fun. Starting at 8pm and going on until 10.30pm. Entrance is £3, please phone 880118 to reserve your ticket just in case.

The Caulkheads are an amplified acoustic band who have many years experience playing for Ceilidhs and Barn Dances. They come from varied musical backgrounds.

Their dances are a mix of traditional and contemporary and their music ranges from English, Irish and Scottish to American, Breton, Czech and Romanian.

The sound could best be described as lively or even stompy, however their infill music can be lively or gentle, ranging from polkas to waltzes.

www.caulkheads.co.uk

Caulkheads

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Disco Bowling for Sophie Rolf

On Friday 12th October 2012 from 8pm come along to The Ryde Superbowl and enjoy a Disco Bowling night in aid of Sophie Rolf. It will be a fun night of Disco music and bowling with some great prizes to be won. Children are very welcome.

Phone 617070 to reserve your lane or drop into Ryde Superbowl, The Pavillion, Ryde. Isle of Wight. Po33 2EL

This event is in association with Wight Island Radio and Ryde Superbowl.

Sophie Rolf

 

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on theIsle of Wightwith not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

West Wight – Zumbafun

Another huge turnout for the final part of the day of Zumba at the West Wight Sports Centre with Tracey Potgieter on stage in a pink tutu encouraging everyone along.

The dancing started with Sophie at the front with all the other children dancing to one of Sophie’s favourite songs ‘Vindaloo’!!. Emily then got on stage to lead the Macarena before all the grown ups started their 2 hour marathon of Zumba.

It was all helped along with free cheese and wine which everyone seemed to enjoy (some more than others… Auntie Yvonne.. not naming names or anything lol..). The evening came to a close with the conga around the sports hall and some freestyle disco dancing (Good moves Pete).

A huge thanks to everyone involved in putting it all together, donating prizes for the raffle, fee use of the sports hall and especially to Tracey.

Let The Zumba Begin

August 4th 2012, 10am at Ryde Community Youth Centre the day of Zumba began with a huge turn out and more bright flurescent outfits than I’d seen since the 1980’s. Helen Baker and Karen Buck were the two amazing trainers who kept everyone going for the two hours.

Leigh Willis managed to persuade her boyfriend Darren Noad to come along and join in and to wear a mankini???? It looked very uncomfortable, but Darren seemed to be having a great time. There were lots of great fancy dress outfit; pink furry books, fairy wings, swimming hats, tutus and even a furry dalmatian suit.

Well done and thank you to everyone involved….

End of term School Disco

Sophie, Jack and friends enjoying the end of term school disco. Thankfully Sophie wisely informed Dad that parents were not allowed to dance. Well done Sophie….

Bestival Tickets Auction in aid of Sophie Rolf

You all have a chance to bid for 2 Bestival tickets

HOW TO BID!!

Vectis Radar Facebook page

Visit the Vectis Radar Facebook page at 4pm on Monday the 27th of august and wait for the auction status, leave your amount and when it gets to our pre chosen sum/Highest bidder you will win 2 BESTIVAL tickets!!

Please remember this is for the Kissypuppy charity and you MUST have the money to pay or the next person with a similar amount will be chosen!

The winning bidder will be contacted by Vectis Radar via facebook message! Tickets will be sent when payment is received! On behalf of Kissypuppy, Missi Strut and Vectis Radar Happy bidding and good luck!! …….

Sophie Rolf - KissyPuppy

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on the Isle of Wight with not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

The Crispin Mini Festival

Charity Event in Aid of KissyPuppy, The Sophie Rolf Fund on 25th August 2012

Live Music from 12pm – 12am at The Crispin Pub in Newport with

Kickback
Beano
Cardinal Richilieu
Jack Gorman
Victoria Clarke
Fly Catchers
Ben Stubbs
Dave – Skin Deep

Have a go in our massive raffle!
Loads of great prizes!
£2 per strip
£5 for 3 strips

Sophie Rolf Fund

Sophie Rolf is a happy go lucky, always smiling, little bundle of joy (most of the time!). In June 2012, 2 months before her 5th birthday, she was diagnosed with an agressive brain tumour. It is early days, and Sophie’s family are still discussing the prognosis with Doctors and seeking further opinions on treatment options.

We have set up KissyPuppy kindly supported by Brainstrust, to create a mechanism for friends and family to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this. It may be used to fund travelling to and from appointments on the mainland, any equipment needed, it may be used for treatment not funded through the NHS or just to ‘Keep Sophie Happy’ by paying for things she likes to do.

We chose the name KissyPuppy as this a word Sophie uses for a very special sort of cuddle and kiss reserved only for her big brother Jack.