POSTFEST 2014 choose KissyPuppy

This year PostFest 2014 is on July 25/26/27 and has chosen to support KissyPuppy – The Sophie Rolf Trust. The line up this year is one not to be missed and with tickets for the whole weekend only £20 or £8 a day it is sure to sell out fast.

On Friday the headline act is the amazing Goldray. Goldray is the project of Reef guitarist Kenwyn House who formed the band in 2010 when teaming up with vocalist Leah Rasmussen (Hydrogen, EMI, Bedrock, Renaissance).

On Saturday the Islands own Plastic Mermaids are the headline act. The Plastic Mermaids sold out their last gig at The Quay Arts in a matter of hours and have had been on the Rob Da Bank and Edith Bowman shows on Radio 1.

Sunday sees the event closed with an 8 piece ska/rock/reggae band from Hampshire called BIGTOPP. From Portsmouth they have a really original sound and are surely destined for bigger things.

Other acts joining these three are a list of some of the best bands and singer songwirters that the Island has to offer at the moment such as; 2nd Time Around, All Washed Up, Bedrock, Cardinal Richelieu, Charming, Claydon Connor, Damien Paul & Band, Duveaux, Floella Grace, Holly Kirby, Jazzy Heath, Jimmys Big Fish, John Wroath, Jones, Jukebox Jazz, Lucid, Naked Fridays, Nils Mason & The Amazing Pudding, Nuberryz, Paul Armfield, Rebel & The Hearts, Signals, Slombers Woke, The Almighty Chancers, The Bear Social, The Nightwatchmen, The Omhz, The Scores, We Almost Were and Weatherkings.

Tickets are available from The County Press Shop, Ticketline and Gold Tone Cafe. For more information go to

www.postfest.co.uk

or on their facebook page

www.facebook.com/POSTFEST.IOW

 

 

postfest final a3 jpeg

POSTFEST 2014

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Barn Dance with The Bismarks for KissyPuppy

Wight Bells have traditionally raised money for Marie Curie Cancer Care and the Earl Mountbatten Hospice and for their next event, they have very kindly decided to support The Sophie Rolf Trust –  KissyPuppy.
The Wight Bells Morris Side present a Barn Dance at The Riverside Centre, Medina Quay on Saturday 5th April from 7.30pm – 11.30pm. Tickets are £7.50 per adult and  £2.50 for children. Telephone Judith on 401685 or Judy on 520160, there is a licenced bar and all proceeds go to KissyPuppy. The band who are playing are a nationally acclaimed band called The Bismarcks who will provide a terrific atmosphere and so we are hoping to have a full house that evening.
There will also be a Raffle (top prize to be a ‘Tiger Milk Feed’, courtesy of the Isle of Wight Zoo)

The Bismarcks are three English musicians playing traditional tunes on three instruments:

Ed Rennie on melodeon, Nina Hansell on fiddle and Gareth Kiddier on piano.

Small but perfectly formed, The Bismarcks sound is some how greater than the  sum of its parts. At times there’s an almost mechanical, unstoppable energy  to their playing. Exactly how this happens is probably not something which  can or should be defined. Suffice to say that it’s just three people doing what they love to do. That’s what makes The Bismarcks amongst the bounciest, most infectious and best music for English ceilidh dancing.

Having performed at ceilidh clubs and festivals for ten years, The Bismarcks disbanded in 2006, only reforming for very occasional dances and parties that are that extra bit special. They are delighted to be back together for a rare performance on the Isle of Wight and are very much looking forward to working with their favourite caller Sheena Masson.

Barn-Dance-web

Sophie Rolf was a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. Through all her therapy Sophie showed great courage and a smile that has inspired all of those around her.

Initially we set up ‘KissyPuppy’ as a mechanism to fund raise for Sophie and her family. Sadly Sophie lost her battle at the end of 2013 but KissyPuppy intends to continue to provide support to children on the Isle of Wight suffering from life-shortening conditions and is now KissyPuppy – The Sophie Rolf Trust.

What this devastating process highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Naomi House in Winchester for specialist respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice (EMH) is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We have been raising funds together with EMH, to create an Island based solution that would support children on the Isle of Wight with life shortening conditions.

The EMH project aims to bring together locally provided and family led palliative care services for children, teenagers and young adults on the Isle of Wight. EMH is working with the Isle of Wight NHS and other local groups, organisations and Island families to make this happen.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, and built around the unique needs of each family. These services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices and will extend to friends and all those involved..

EMH is already setting up a Family Network to bring together Island families who are affected by life shortening conditions and to provide them with help and support through their Information & Support Centre in the John Cheverton Centre.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

 

Cake Sale for Kissypuppy at Sophie’s Shop

Cake Sale at Sophie’s Shop on the 22nd February 2014 from 9.30am all in aid of KissyPuppy – The Sophie Rolf Trust. Please come along and support Sophie’s little cousins Chelsea and Jordan’s cake sale. The girls will be in the shop this day selling cakes and are very excited about their fundraising event. Alongside the cake sale they will also be introducing and selling the new ‘Sophie Bear’.

The main Earl Mountbatten Shop will also be having a massive book sale this day also.

Sophie Shop Cake Sale copy