Sophie Rolf staying strong

Update on Sophie Rolf’s last couple of days over at Southampton Hospital from dad Aaron

A helluva day at Southhampton Hospital!! The plan was simple – get the call with Sophie’s MRI results before heading over this afternoon where her chemo would be ready and waiting!
The reality – chase hospital all morning with no luck so go over for chemo only to be told not made and wouldn’t be ready until tomorrow!!

In addition to this they are in the middle of switching their computer analysing system so are unable to give comprehensive results of her scan! However the preliminary findings are that there may be a very slight increase in the size of her tumour. Approx 10% however this is worst case scenario and may be less. For a tumour to be “progressive” and for treatment to stop it has to have increased in size by 25%. So not the greatest news but certainly not the worst!

Sophie’s consultant is still extremely happy with the way she is responding to everything and even called her the “Star Patient” and although we are bias we would have to agree!

On being told we have to go back tomorrow for a third day running Sophie’s response was simply “..ah well Dad, it’s only one more day it doesn’t matter..”
With an attitude like that how can I be anything less than magnanimous?

Thank you from all of us for all your kind words, prayers & positive thoughts…

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Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Sophie Rolf MRI today

A message from Aaron (Sophie Rolf’s Dad) last night

On the eve of Sophie’s next MRI I wanted to say a few words about the last 12 months. Sophie’s mum (Gemma Blamire) summed it up beautifully.

I know it has been written so many times before but the smile that Sophie wears on her face every single day has given me the strength to carry on. The strength to get up each morning. The strength to accept this life I have been dealt.

We have not given up hope and we still search daily for the chance of a miracle – whatever happens I want to be able to at least know that we did everything possible to beat this terrible disease.
I would change places with her in a heartbeat – to give her the life she deserves is my greatest wish. As a father I am supposed to be able to keep my children safe and in that respect I have failed – this is not me wallowing in self pity but simply stating how I feel.

Thank you to each and every person who has supported us. Be they family, friend or complete stranger that has donated time, money or simply prayers or thoughts we, as a family, will be forever in your debt.

Whatever the next twelve months may bring then so be it. If Sophie can face everything with courage, dignity and above all a smile I would be doing her an injustice if I were not to do the same.

Sandown-Zoo-0378-29052013

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Another Long Day for Sophie Rolf

After another long day in Southampton Hospital (0930-1745) and after Sophie had her chemo we were told she possibly has a line infection
So begins a 10 day course of antibiotics….at least I get to wear my doctors outfit again!

Sophie is as cheery as ever and has recently found a ‘Whoopee Cushion’……no words needed me thinks!!!

Aaron (Sophie’s dad)

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Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Who says chemotherapy lessens your appetite? Lol

Sophie Rolf in Hospital with her snacks. ‘Who says chemotherapy lessens your appetite? Lol’

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Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Zen Hair & Beauty Christmas shopping and wrapping in aid of Sophie Rolf

Let Zen Hair & Beauty take the headache out of your Christmas shopping and wrapping this year. Solve all your gift problems at Zen’s Christmas shopping evening all in aid of little Sophie Rolf.

Join us on:

Wednesday 7th November between 5pm – 8pm
Free Mulled Wine, Mince Pies, Shortbread, Cinnamon Coffee

Enjoy a festive bite and a glass of something nice whilst you browse our extensive range of fantastic gifts. Something for everyone guaranteed.

1 night only offers – with up to 60% off.
Shop and be rewarded – earn free gift vouchers.
Some freebies and 3 for 2 on certain items.
Save £’s on “must have” Christmas treatments, with our book and pay in advance offer.

We will also be offering a gift wrapping service and Raffle – chance to win some great gifts, services or treatments. The profits from which will go towards The KissyPuppy Charity.

Ask your therapist for more details………

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on theIsle of Wightwith not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis. Sophie has recently has another MRI scan and although still inoperable the tumour was responding to the treatment and had shrunk by around 38%.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

Irish Charity Night in aid of Sophie Rolf

Irish Charity Night in aid of Sophie Rolf at The Horse & Groom.

Friday 7th December 2012

Starters

Organic Irish oak smoked salmon with horseradish creme fresh & soda bread
Grilled white pudding topped with stout rarebit on a bed of mixed leaves
Nettle and potato soup with garlic croutons

Mains

Local beef & Guiness pie topped with short crust pastry
Dingle fish pie (Salmon, cod and prawns topped with mash & Irish cheese)
Dublin Coddle (gammon & sausage stew with onions & potato broth)

All served with champ and buttered cabbage

Puddings

Baileys and chocolate pot with homemade shortbread
Selection of Irish cheeses and biscuits
Chocolate orange and Guiness cake

£19.95 per person

All profits from meals will be donated to the KissyPuppy appeal

LIVE MUSIC WITH THE HOOLEYS AND LIVE
CERI IRISH DANCERS

The Horse & Groom
Main Road
Nigwood
I.O.W.
PO30 4NW

Tel: 01983 760672

www.horse-and-groom.com

 

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on the Isle of Wight with not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis. Sophie has recently has another MRI scan and although still inoperable the tumour was responding to the treatment and had shrunk by around 38%.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

Barclays Bank Fundraiser

Barclays in Newport are fundraising for Sophie the week commencing Tuesday 28th August.

They will have a vintage sweet stall and raffle in the branch to raise funds.

Also one of the Business Managers, Lisa Rowles, is participating in the Zumbathon 4 Sophie on 2nd September so any sponorship will be greatly appreciated for her, especially as Barclays will match each pound that the staff raise.

Anyone passing by to pop in and support the Barclays team.

 

Replica Model Church – Open Afternoon in aid of Sophie Rolf

Richard Dollery has been building this replica model church in the back garden of his home. It was featured on the South Today Programme in May and has been in the Isle of Wight County Press.

Richard has very kindly offered to have an open afternoon on Sunday 9th September from 1pm – 5pm at his home, 6 The Bower, Alverstone Rd, Queens Bower, Sandown. Parking is at Borthwood Copse main car park near the Hairpin Bend. Richard will put some direction signs near the car park to where the church is located. Details of the event will also be in the County Press. All donations will go to The Sophie Rolf Fund.

Sophie Rolf

Sophie Rolf

Sophie Rolf

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on theIsle of Wightwith not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

70 Miles for Sophie

On the 15th September 2012, Ben Tanner Rolf, David Begg, Anthony Ward, Andy Ward, George Booth, Nick Krstenic, Rich Inman, Lee Gascoinge and Stephen Mundell and possibly a couple more will be completing a 70 mile around the Isle cycle ride. They will be starting from the Flemming Pub in Binstead at 8am and it is all to raise money for The Sophie Rolf Fund.

KissyPuppy

Ben Tanner Rolf, Anthony Ward, David Begg and George Booth

KissyPuppy

Ben, Rich Inman, David and Anthony

If you want to sponsor them please use the link below

www.justgiving.com/KissyPuppy-70Miles4Sophie

KissyPuppy

7 Hills Challenge in aid of Sophie Rolf

Keith Jacobs, Rob Graham and Jamie Burton will be completing the ‘7 Hills’ in aid of KissyPuppy and The Sophie Rolf Fund.

The ‘7 Hills’ is 26 miles in total, part of the ‘Hills Killer’ and made up of a series of checkpoints placed across the Island. Keith, Rob and Jamie will be starting at The Apple Farm Freshwater at approximately 9.00am on Sunday 23rd September ready to conquer the 7 Hills.

You can sponsor them by clicking here to go to the JustGiving page

KissyPuppy

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on theIsle of Wightwith not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

kissyPuppy