Blacksheep Bar Gig for KissyPuppy

The Blacksheep Bar and Club Lounge present Any Road, The Dead Perrys, Sam Sheasby, Joe Chillcott, Penny Churchill and North and South on Thursday May 15th at the Blacksheep Bar, Ryde in aid of The Sophie Rolf Trust – KissyPuppy.

Doors open at 7pm

Tickets are £2

This is a 16+ event

The event is going to be a night of original and covered music from island musicians to support a well deserved charity, starting from 7 onward we’re going to have some singer songwriters open up and to finish the night some bands

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Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Indian meal at 3 restaurants fundraiser for Sophie Rolf

Jimmy and Munshur Miah are holding a fundraising event at the Tamarind and Nabab restaurants in Newport and the Island Spice at the bottom of Union St in Ryde on Thursday 27th of September at 7.30 in aid of Sophie Rolf.

The food is being donated by the restaurants and there will be an entrance fee of £13.95 for a set menu of starter, main, rice and naan bread.

To book in to a restaurant call;

Tamarind 01983 526777
Nabab 01983 523276
Island Spice 01983 810705

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on the Isle of Wight with not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.

Let The Zumba Begin

August 4th 2012, 10am at Ryde Community Youth Centre the day of Zumba began with a huge turn out and more bright flurescent outfits than I’d seen since the 1980’s. Helen Baker and Karen Buck were the two amazing trainers who kept everyone going for the two hours.

Leigh Willis managed to persuade her boyfriend Darren Noad to come along and join in and to wear a mankini???? It looked very uncomfortable, but Darren seemed to be having a great time. There were lots of great fancy dress outfit; pink furry books, fairy wings, swimming hats, tutus and even a furry dalmatian suit.

Well done and thank you to everyone involved….

Ryde Zumbathon

On Saturday 4th August Bodysmart Fitness Helen Baker and fellow instructor Karen Buck will doing a 2 hour Zumbathon at Ryde Youth Centre, Upper High Street, Ryde.

10am – 12noon (Doors Open at 9.30am)

Everyone Welcome.

£8 Zumbathon entry fee (payable upfront as space limited)

All entry fees & sponsorship will be donated to ‘KissyPuppy’

Sponsorship forms also available – Please ask Helen or please visit the website:

http://www.justgiving.com/KissyPuppy

KissyPuppy

Live at the Lud in aid of KissyPuppy – The Sophie Rolf Fund

Live music at The king Lud on The Esplanade, Ryde on 30th August 2012 starting at 7.30pm

Live music from the Wild Oats , The Ohmz and Nils Mason

Admission is donations on the door

Raffle with donations from local business including Bestival tickets.

Raffle tickets for the Bestival raffle are available from King Lud and Black Orchid in advance.

KissyPuppy

and lots more fantastic raffle prizes

Photoshoot and three free prints by Photography by Marcelle – http://www.photographybymarcelle.co.uk/

Meal for two from Lake side Wootton – http://www.lakesideparkhotel.com/

Owl by Freya Wight – http://www.owlofwightartycraftystuff.co.uk/

Family Tickets to Isle of Wight Zoo – http://www.isleofwightzoo.com/

Silver and Pearl Necklace courtesy of IOW Pearl – http://www.iowpearl.co.uk/

A box of 6 fully decorated cupcakes from Wight Cakes – http://www.wightcakes.co.uk/

Voucher for Skype/Email tarot reading from Morwenna – http://www.morwennauk.co.uk/morwenna2/

Wine from Johnny Keywood

Photo restoration voucher worth £40 from Paula Bailey – http://www.paula-bailey.com/restoration1.html

Pop Portrait voucher worth £25 from Paula Bailey – http://www.paula-bailey.com/pop1.html

Framed photographic image from Cora Wade – http://coralee.org.uk/#/photography/4560379272

Pet Photography Voucher worth £45 from Cora Wade – http://coralee.org.uk/#/pet-photography/4563925810

Set of Candles from Jane Lane

Framed Photography Print from Marie’s Digital Photography – http://www.mariesdigitalphotography.co.uk/

Magic Eraser from Lyn Blackledge – http://www.facebook.com/WightBuzz

Sophie Rolf is a happy go lucky, always smiling, little bundle of joy (most of the time!). In June 2012, 2 months before her 5th birthday, she was diagnosed with an agressive brain tumour. It is early days, and Sophie’s family are still discussing the prognosis with Doctors and seeking further opinions on treatment options.

We have set up KissyPuppy kindly supported by Brainstrust, to create a mechanism for friends and family to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this. It may be used to fund travelling to and from appointments on the mainland, any equipment needed, it may be used for treatment not funded through the NHS or just to ‘Keep Sophie Happy’ by paying for things she likes to do.

We chose the name KissyPuppy as this a word Sophie uses for a very special sort of cuddle and kiss reserved only for her big brother Jack.