POSTFEST 2014 choose KissyPuppy

This year PostFest 2014 is on July 25/26/27 and has chosen to support KissyPuppy – The Sophie Rolf Trust. The line up this year is one not to be missed and with tickets for the whole weekend only £20 or £8 a day it is sure to sell out fast.

On Friday the headline act is the amazing Goldray. Goldray is the project of Reef guitarist Kenwyn House who formed the band in 2010 when teaming up with vocalist Leah Rasmussen (Hydrogen, EMI, Bedrock, Renaissance).

On Saturday the Islands own Plastic Mermaids are the headline act. The Plastic Mermaids sold out their last gig at The Quay Arts in a matter of hours and have had been on the Rob Da Bank and Edith Bowman shows on Radio 1.

Sunday sees the event closed with an 8 piece ska/rock/reggae band from Hampshire called BIGTOPP. From Portsmouth they have a really original sound and are surely destined for bigger things.

Other acts joining these three are a list of some of the best bands and singer songwirters that the Island has to offer at the moment such as; 2nd Time Around, All Washed Up, Bedrock, Cardinal Richelieu, Charming, Claydon Connor, Damien Paul & Band, Duveaux, Floella Grace, Holly Kirby, Jazzy Heath, Jimmys Big Fish, John Wroath, Jones, Jukebox Jazz, Lucid, Naked Fridays, Nils Mason & The Amazing Pudding, Nuberryz, Paul Armfield, Rebel & The Hearts, Signals, Slombers Woke, The Almighty Chancers, The Bear Social, The Nightwatchmen, The Omhz, The Scores, We Almost Were and Weatherkings.

Tickets are available from The County Press Shop, Ticketline and Gold Tone Cafe. For more information go to

www.postfest.co.uk

or on their facebook page

www.facebook.com/POSTFEST.IOW

 

 

postfest final a3 jpeg

POSTFEST 2014

Our Story

The Sophie Rolf Trust – Registered Charity 1156155

Sophie Rolf was a beautiful, happy, larger than life little girl. She enjoyed doing all things little girls love, especially her swimming and dance classes.

Sophie started school in September2011, joining her big brother Jack at St Saviours Primary School in Totland on the Isle of Wight.

During May 2012 we noticed a tremor in Sophie’s left arm and, after numerous hospital visits and finally an MRI scan in June, we received the terrible news that no parent wants to hear – Sophie had a ‘Supratentorial high grade Glioma, bilateral thalamic tumour’.

This is an aggressive brain tumour located in a very awkward part of the brain. We were told that the tumour was inoperable and the prognosis poor. Sophie faced things that no child or adult should have to go through. Neuro surgery to fit shunts, central line surgery, radiotherapy, chemotherapy, a trial drug, numerous MRI & CT scans, homeopathic drugs and other tests were all met with determination, strength, courage and most of all always a smile.

She made us so proud to call her our daughter. As a family we never gave up hope and actively pursued other medical opinions from Europe and the rest of the world – however each reply reinforced the original diagnosis.

Sadly Sophie lost her fight in November 2013 at home alongside her family that adored her so much. She didn’t suffer and as always, she decided when the time was right.

‘KissyPuppy’ was originally set up to enable friends and family to fund raise for Sophie and initially was used to support Sophie’s journey through this including travelling to and from appointments on the mainland, any equipment needed and creating magical experiences and memories.

We chose the name ‘KissyPuppy’ as this was a word Sophie used for a very special sort of cuddle and kiss reserved only for her big brother Jack.

What this devastating process highlighted to us as a family was the limited healthcare options available for children with life shortening conditions on the Isle of Wight.

There is no specialist children’s hospice on the Isle of Wight. Families are offered the option of travelling to Winchester for respite or end of life care, which is a three hour journey each way, relying on Ferries. Travelling to the mainland at the point when Sophie was very poorly is something we did not want to be thinking about.

The Earl Mountbatten Hospice provides comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-shortening illness and, working in partnership with the local NHS, they are extending these services to children.

Sophie said early on in her treatment that she wanted to help other children as they have helped her………so that is what we have pledged to do. We have joined forces with the Earl Mountbatten Hospice and the local NHS to help support and develop services on the Island for children and young people, and their families, with life shortening conditions.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, built around the unique needs of each family.

Services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices. Sophie’s first project was to provide an area within the existing hospice building that will be suitable for use by children and their families.

The area was to provide the equipment needed to fulfil the medical requirements of the individual whilst at the same time recognise the needs of the family as a whole.

From day one Sophie was an inspiration to all. She never once complained or grumbled about what she was going through. She greeted each and every day with a smile and her attitude and spirit made her fundraising such a success that within a few months she had raised the £10,000 target set for the first project.

At the beginning of November 2013 Sophie, just a few weeks before she passed away, opened the children’s rooms at Earl Mountbatten Hospice, a massive achievement of which we are so proud of her for. Sophie had already started on her next project, a Playground, within the grounds of the Hospice.

In her short life, Sophie has changed Children’s services here on the Island. We, as Sophie’s family, recognise there is so much more to be done. Kissypuppy – ‘The Sophie Rolf Trust’ is now a registered charity.

We are committed to helping the Earl Mountbatten Hospice, local NHS and other interested parties in the continued development of services for children and their families with life shortening illnesses on the Isle of Wight.

We hope we can continue Sophie’s good work and make a legacy she would be proud of.

www.justgiving.com/EMH-KissyPuppy

Music and Film Event for Sophie Rolf

Saturday 13th July at The Sun Inn, Hulverstone 4:00pm – 11:00pm live music & film this is a FREE event but donations to the Sophie Rolf Fund are welcomed.

There will be a raffle and children’s tombola and some very special prizes up for auction including Camp Bestival passes.

Camp Bestival Family Weekend Tickets Auction

All money will go towards The Sophie Rolf Fund, currently fundraising to create an Island based solution supporting children on the Isle of Wight with life shortening conditions.

The Sun Inn plan to have a special KissyPuppy set menu for the day with a percentage going to The Sophie Rolf Fund from the menu, see below.

We also have use of a minibus to shuttle people to and from the event if there is enough interest. We only need to cover a minimum charge and costs as a driver has offered their time for free. Please contact kissypuppy@live.com if you are interested.

Approximate times of the event:

3.45pm – Sam Scadgell

4.30pm – Film Session 1: For kids of any age

5pm – J.C. Grimshaw and Family

6.15pm – Film Session 2: Surferama

7pm – Sarah Close

7.45pm – Film Session 3: Music Video

8.45pm – Signals

Risky Business to play in the pub after the Signals

Please contact kissypuppy@live.com if you are able to help out with collection tins and buckets at the event please 🙂

MIST Sophie new poster hi res NEW

J.C.Grimshaw and Family on Ukulele

JC Grimshaw

J.C. Grimshaw is a song writer/multi-instrumentalist, who plays guitars, mandolins, harmonica, ukulele and Hawaiian lap guitar with a deep rooted passion.

Over the years J.C. has worked with many established artists ranging from Midge Ure in the pop world, to Bob Brozman in the acoustic blues world. He has played worldwide in venues ranging from huge stadiums to small folk clubs and art centres.

JC Grimshaw-pics

His interest in music is hugely diverse. He has played in numerous bands, making a name for himself in many different arenas: Blues,Vintage Jazz, Gypsy, Country, Folk and Pop.

www.jcgrimshaw.com

Sam Scadgell

Sam

Sam is very talented musician who can be seen supporting many local events in the West Wight. Sam is a local photographer who launched Xposure Photographic in 2012, Sam is now pushing his photography to new boundaries within the areas of business, sport, events, and fine art.

www.xposurephotographic.com

 

Sarah Close

 

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Sarah is a self taught pianist/guitarist/ukelelist from the Isle of Wight. Sarah will be playing at this years Bestival. Sarah has released a debut EP ‘To the Seaside”.

noisetrade.com/sarahclose

7. Logo

Headlining the evening are The Signals, a female fronted indie / math rock four piece from the Isle of Wight.

‘Facial Furniture’ EP OUT SOON!!

Their debut EP ‘Square Wheels’ is available for download now

Signals

www.facebook.com/signalsuk

MIST

Paul Windridge ‘MIST’

MIST or Moving Image Sound and Things

The 3 ‘MIST’ short film breaks will last about 30 minutes each, and will be shown in the pub between the ‘live’ music sessions.

 

El vendedor de humo web

Film Session 1: For kids of any age

surf

Film Session 2: Surferama

Radiohead-Street-Spirit-web

Film Session 3: Music Video

 

www.mistmovingimage.com

Sun

The Sun Inn is a 600 year old hostelry set in beautiful countryside near Brook Chine on the South-West coast of the Isle of Wight. It has a huge beer garden and an outstanding sea view.

The Sun Inn plan to have a special KissyPuppy set menu for the day with a percentage going to The Sophie Rolf Fund from the menu.

Menu

Sun

www.sun-hulverstone.com

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy