Learn Martial Arts and Self Defence in aid of KissyPuppy

Master John Byrne – 6th Dan will be running all of his Martial Arts classes during February free of charge but asking you to donate to KissyPuppy – The Sophie Rolf Trust and on Sunday the 16th February he will be running a ‘Ladies Self Defence Class’ for £10 a head with all proceeds going to KisyPuppy too.

Dates of classes and contact details on the posters.

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50 People to do The Great South Run for Sophie Rolf

Team KissyPuppy – Great South Run 2013 Close to 50 people have signed up for The Great South Run, running, walking or even crawling the 10 miles through Portsmouth and Southsea. Each member of the team will be easy to spot as Sophie’s Uncle Steve has organised bright KissyPuppy vests and Butterfly wings for the team. There is a justgiving page set up specifically for the event so please help us raise as much money as possible for such an important cause. www.justgiving.com/KissyPuppyGSR2013

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Sophie Rolf – Beautiful Butterfly at last years Bestival

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her. Unfortunately the prognosis is poor. What this devastating process highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island. Currently, children from the Isle of Wight travel to Naomi House in Winchester for specialist respite or end of life care, which for Sophie and her family would be a three hour journey each way. The Earl Mountbatten Hospice (EMH) is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children. We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with EMH, to create an Island based solution that would support children on the Isle of Wight with life shortening conditions. The EMH project aims to bring together locally provided and family led palliative care services for children, teenagers and young adults on the Isle of Wight. EMH is working with the Isle of Wight NHS and other local groups, organisations and Island families to make this happen. Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, and built around the unique needs of each family. These services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices and will extend to friends and all those involved.. EMH is already setting up a Family Network to bring together Island families who are affected by life shortening conditions and to provide them with help and support through their Information & Support Centre in the John Cheverton Centre. Donations would be very much appreciated and we thank you for your continued support. www.justgiving.com/KisspyPuppyGSR2013

Chloe and Emilie’s haircut for The Sophie Rolf Fund

Chloe and Emilie’s haircut for The Little Princess Trust and sponsorship for Kissypuppy – The Sophie Rolf Fund!

Chloe and Emilie are getting their haircut for Earl Mountbatten Hospice because other little children need their care and help.

A few months ago Chloe (who turned 12 in Feb) approached their Mum and told her she wanted to shave her hair off to donate it to The Little Princess Trust ‘for little girls who weren’t as lucky as her’. Mum was blown away by this lovely gesture but after lots of talking and gentle persuasion I encouraged Chloe to get it cut short (as short and as styled as she wants but not shaved off!)

Hearing about this Emilie (8 years old) decided she wanted to do the same but with a twist. We have read and talked about the precious little girl called Sophie Rolf, she has recently turned 6 and sadly has a life limiting illness. Living on the Isle of Wight she is restricted about where she can go for such specialist care, so they are fundraising for better care for children, at the Island’s only hospice, The Earl Mountbatten.

The girls have been growing their hair in order to donate it to The Little Princess Trust but with the aim to raise some money for the Kissypuppy appeal.

The girls will be having their hair cut at Take 2 in Newport.

We know you have all supported us already this year when we took part in Walk the Wight but the girls would be so pleased if you could dig deep and spare any pennies to sponsor them getting their hair cut.

Please help support the girls in any way you can!

From one proud Mummy!!

The Girls have their own JustGiving page where you can donate now

www.justgiving.com/Kissypuppy-3beautifulgirls1goal

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imaging (1)

imaging (2)

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Theo to do the London Triathlon for Sophie Rolf

One challenge isn’t enough for Theo Krekis, he has now signed up to do The Virgin Active London Triathlon in aid of The Sophie Rolf Fund. This is an Olympic distance triathlon. The route is around London and consists of: 1500m Swim / 40km Bike / 10km Run.

Good luck Theo

You can sponsor Theo by clicking on the link below

www.justgiving.com/EMH-KissyPuppy

Theo Face.

theo swimming

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Head shave for Sophie Rolf

Leonie Sexton and Carol Haynes are going to have all of their hair cut off in aid of The Sophie Rolf Fund. All you have to do is sponsor Leonie or Carol via the www.justgiving.com/EMH-KissyPuppy page and if they get over £1000 they will have all of her hair cut off and have it donated to the Little Princess Trust who make wigs for children who have lost their hair due through cancer treatment. Make sure you leave a comment so they know you have sponsored them 🙂

Jpeg

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

309 Mile Cycle for Sophie Rolf

Theo Krekis, James O’Flynn and Dean Moore are going to be cycling from Leicester to Falmouth in July over the course of 5 days for Kissy Puppy – The Sophie Rolf Fund.

The cycle is scheduled to take 5 days.

Day 1: Hinckley to Tewkesbury (72 miles)
Day 2: Tewkesbury to Bristol (49 miles)
Day 3: Bristol to Taunton (55 miles)
Day 4: Taunton to Okehampton (60 miles)
Day 5: Okehampton to Falmouth (73 miles)

If you wish to sponsor Theo, James and Dean please go to www.justgiving.com/EMH-KissyPuppy and put in the comment box that it is for Theo.

photo

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Ian Pacey to swim The Solent for Sophie Rolf and WWSC

Ian Pacey has set himself the challenge of swimming the Solent this year in aid of West Wight Sports Centre and the Sophie Rolf Fund on Sunday August 18th, 2013. Ian has to raise a minimum of £250 for the Sports Centre but anything over and above this is split 50/50 with the Sophie Rolf Fund.

The swim starts at Hurst Castle and finishes at Colwell Bay a distance of just over 2km. Ian has to do a pool swim of 100 lengths (16 lengths further than the actual swim) on August 13th to gain his time slot for the swim and to cover the distance in case for some reason the event is unable to take place due to the weather.

If you wish to support Ian in his mammoth swim you can do so using the link here

www.everyclick.com/ianpacey2013

Pacey

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Island Coastal Footpath Walk for Sophie Rolf

A Sponsored Coastal Footpath Walk for Sophie Rolf

The parents and families of some of Sophie’s classmates will be walking the whole 72 miles of the Island’s coastal footpath this May Bank holiday weekend (24th – 27th May) to raise money for Sophie’s appeal in aid of the Earl Mountbatten Hospice

To donate please go to www.justgiving.com/EMH-KissyPuppy

Sophie-Rolf_8511

Friday 24th May

Morning Freshwater Bay to Chale 11 miles
Meet 7am outside lifeboat station

Afternoon Chale to Sandown 12 miles
Meet 1pm at Military Road entrance to Wight Mouse

Saturday 25th May

Morning Sandown to Ryde 12 miles
Meet 8am Sandown Esplanade (exact meeting point tbc)

Afternoon Ryde to Cowes 8 miles
Meet 1pm outside Appley Beach Cafe

Sunday 26th May

Morning Cowes to Shalfleet 8 miles
Meet 8:30am Cowes Esplanade (exact meeting point tbc)

Afternoon Shalfleet to Totland Bay 11 miles
Meet 1pm outside the New Inn

Monday 27th May

Morning Totland Bay to Alum Bay 5 miles
Meet 8am on Turf Walk

Finale!! Alum Bay to Freshwater Bay 5 miles
Meet 11am outside main entrance to Alum Bay Pleasure Park

Children are encouraged to join us on the final leg of the walk
– from Alum Bay to Freshwater Bay on Monday 27th May.

School-Disco-3207

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

 

Stewart to run the Marathon for Sophie Rolf

Stewart Shephard is running the London Marathon this year in aid of the Sophie Rolf Fund. Stewart a father of five children who runs an under nine football team in Newport and also one in the West Wight had read about Sophie and decided he wanted to do something to help.

Stewart says ‘the training is not too bad but the worst thing is the weather’. ‘Helping Sophie is good incentive to keep going, and if she can cope with what she is going through then I can do the training’ said Stewart to the County Press.

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The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy