Bestival Tickets Raffle for Sophie Rolf

A massive Thank you to the Bestival for giving us a Family Camping ticket to give to a lucky family at the Hospice Summer Party last Saturday. The family who won however have very generously have donated the tickets back to Kissypuppy to raffle and hopefully raise some more funds for development of Children’s Services at the Hospice on the Island. Not only will you be supporting a great cause but be in for a chance to win a great prize.

Gemma (Mum) xx

To win family camping tickets go to the Beautiful butterfly Bestival Tickets Raffle group on facebook organised by the wonderful Michaela White

If the link does not work above copy and paste the link below

https://www.facebook.com/groups/656742394337397/

Bestival-2013

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is poor. What this devastating process highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Naomi House in Winchester for specialist respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice (EMH) is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with EMH, to create an Island based solution that would support children on the Isle of Wight with life shortening conditions.

The EMH project aims to bring together locally provided and family led palliative care services for children, teenagers and young adults on the Isle of Wight. EMH is working with the Isle of Wight NHS and other local groups, organisations and Island families to make this happen.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, and built around the unique needs of each family. These services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices and will extend to friends and all those involved..

EMH is already setting up a Family Network to bring together Island families who are affected by life shortening conditions and to provide them with help and support through their Information & Support Centre in the John Cheverton Centre.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Summer Party at The John Cheverton Centre

KissyPuppy – The Sophie Rolf Fund have organised a Summer Party at The John Cheverton Centre for families affected by children with life shortening conditions on the 24th August 2013 from 11am – 1pm supporting the 2020 Vision Project.

This is a fully sponsored event. A Disney Princess will be there to meet and greet all the families and provide entertainment. All the families will be invited to put their names in a hat to be in with a chance to win a family weekend pass for the Bestival. There will a portrait photographer on site, each family will be offered 1 print free of charge and other photographers will there to take more informal pictures. Images of the day will be available digitally free of charge. There will also be craft making for the children and a story teller. EMH are providing food and drink throughout the event.

The 2020 Vision project aims to bring together locally provided and family led palliative care services for children, teenagers and young adults on the Isle of Wight. Earl Mountbatten Hospice is working with the Isle of Wight NHS and other local groups, organisations and Island families to make this happen.

Over a period of time a range of services will be developed offering flexible, individualised care and support, in the place of choice, and built around the unique needs of each family.These services will be coordinated centrally, and delivered by a multi-professional team, working together with each family to support their wishes and care choices and will extend to friends and all those involved – in principle to be inclusive as possible, and limited only by demand or capacity issues.

Earl Mountbatten Hospice is already setting up a Family Network to bring together Island families who are affected by life shortening conditions and to provide them with help and support through our Information & Support Centre in the John Cheverton Centre.

Family Day 2020V CP advert copy

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Naomi’s House in Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children by 2015.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

The severity of Sophie’s rare condition means that in the interim, a space may be needed to support Sophie and her family in her final days.

KissyPuppy is raising money for the Earl Mountbatten Hospice. This could go towards things like transforming a space into a child friendly residence that would bridge the gap whilst new long term services are developed on the Isle of Wight.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

 

Sophie Rolf & Friends at M&S

Sophie Rolf and friends will be collecting for KissyPuppy at Marks and Spencers from 10am to 4pm this Saturday 25th May 2013. Sam Sheasby will also be joining them to play between 1pm and 2pm. Please come down and support them in this amazing cause. Sophie is very close to achieving the initial £10,000 to create a space into a child friendly residence on the Earl Mountbatten Hospice site, not just for Sophie, but for other children and families who may need this service in the future.

TomsEcoLodge-9803-11052013

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Skating Gala in aid of Sophie Rolf

The Isle of Wight Ice Dance Figure Skating Club is holding a skating Gala on Friday 10th May at 5.30pm – 6.30pm at Planet Ice for the Sophie Rolf Fund

The Isle of Wight Ice Dance Figure Skating Club is a self-funded group who raise money throughout the year to support the skaters and synchronised skating teams to help towards costs of travel, competition entry fees even social events. They have a membership of 150 with age ranges from 4 to 60 years of age, with skaters that compete internationally, some locally and we have those that just do it for fun.

As a group they like to help the local community by way of putting on shows and gala’s, last year they took this one step further and decided to nominate a local charity `Johns Club’ and performed a gala whereby all funds raised went to them to help support their holiday club which was closed due to lack of funds. This was so successful, not only in raising money but also bringing our club together. They performed a special number with a mix of skaters just for the evening, Johns Club joined them, and even managed to get a few of them on the ice by way of wheelchairs and the `older’ skaters skating them around during the number, the looks on their faces just said it all.

This year they are having a skating gala on Friday 10th May at 5.30pm – 6.30pm at Planet Ice and are going to donate all funds raised that evening to the Sophie Rolf Fund – Kissy Puppy. Sophie is an inspiration to all children and they are honored to be able to help.

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jewels Leon 5

Skate Camp 2012

logo copy

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Mary Poppins running the London Marathon for Sophie Rolf

Paul Spreadbury contacted KissyPuppy many months ago asking if he could fund raise for Sophie as he was going to run the London Marathon. Paul asked if Sophie has a favourite Disney character that he could dress up as for the race.

Sophie’s favourite Disney character is Mary Poppins and watches the movie all the time. Sophie knows all the words and songs to the movie so it had to be Mary Poppins. We almost thought Paul would ask if there was another character he could dress as, but no, he has come up with and absolutely fantastic outfit looking exactly like Mary Poppins. Paul also plans to carry an umbrella and a carpet bag just like Mary Poppins and hopes to collect money while running the marathon.

We would like to wish Paul all the very best for the marathon and we will all be looking out for him on tv this weekend.

Mary Poppins

Paul Spreadbury as Mary Poppins

Sophie-Rolf-5644

Sophie with her Mary Poppins DVD

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

 

Caulkheads Barn Dance for Sophie Rolf

Island Band ‘The Caulkheads’ are having a ‘Barn Dance’ in aid of KissyPuppy – The Sophie Rolf fund.

On Friday 3rd May 2013 at Wootton Community Centre come along and join the fun. Starting at 8pm and going on until 10.30pm. Entrance is £3, please phone 880118 to reserve your ticket just in case.

The Caulkheads are an amplified acoustic band who have many years experience playing for Ceilidhs and Barn Dances. They come from varied musical backgrounds.

Their dances are a mix of traditional and contemporary and their music ranges from English, Irish and Scottish to American, Breton, Czech and Romanian.

The sound could best be described as lively or even stompy, however their infill music can be lively or gentle, ranging from polkas to waltzes.

www.caulkheads.co.uk

Caulkheads

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

Stewart to run the Marathon for Sophie Rolf

Stewart Shephard is running the London Marathon this year in aid of the Sophie Rolf Fund. Stewart a father of five children who runs an under nine football team in Newport and also one in the West Wight had read about Sophie and decided he wanted to do something to help.

Stewart says ‘the training is not too bad but the worst thing is the weather’. ‘Helping Sophie is good incentive to keep going, and if she can cope with what she is going through then I can do the training’ said Stewart to the County Press.

IMG_1001

The Sophie Rolf fund, KissyPuppy, is raising money for Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.

The Hospice is working in partnership with Sophie’s parents, and other interested organisations and families on the Island, to research both the need and opportunity to develop its services in the future to include children and young people.

Earl Mountbatten Hospice is committed to improving the range of services and facilities to meet palliative health and social care needs of children and their families and carers on the Isle of Wight in the long term.

The severity of Sophie’s rare condition means that in the interim a place may be needed at the Hospice to support Sophie and her family in her final days. Currently Sophie must travel off the Isle of Wight for much of her treatment, the nearest hospice for children is based in Winchester.

The initial target is to raise £10,000 for Earl Mountbatten Hospice to transform a space into a child friendly residence on the Hospice site, not just for Sophie, but for other children and families who may need this service in the future, would bridge the gap whilst new long term services are being explored.

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

The Bath Half for Sophie Rolf

Helen Figgins, Steve Blamire, Peter Sexton, Yvonne Sexton, Leonie Sexton and Theo Krekis are running the Bath Half Marathon in aid of Sophie Rolf.

The ‘Bath Half’ as it is affectionately known, is one of the longest established and most popular city centre road events in the UK. It covers a two lap 13.1 mile (21.1km) traffic-free course straddling both sides of the River Avon. The race starts and finishes in Great Pulteney Street, in the heart of the World Heritage City of Bath.

You can sponsor them by using this link: www.justgiving.com/EMH-KissyPuppy

Helen Figgins and Steve Blamire

Yvonne Sexton

Theo Krekis

Peter Sexton

Leonie Sexton

Sophie Rolf is a beautiful, happy, larger than life little girl who, a few months before her 5th birthday, was diagnosed with an inoperable brain tumour. She has responded to therapy well and most importantly with courage and a smile that has inspired all of those around her.

Unfortunately the prognosis is still poor. What this devastating process has highlighted to Sophie’s family, is the limited healthcare options available for children living or dying from life limiting conditions on the island.

Currently, children from the Isle of Wight travel to Naomi’s House in Winchester for respite or end of life care, which for Sophie and her family would be a three hour journey each way.

The Earl Mountbatten Hospice is an independent charity providing comprehensive end-of-life healthcare for the Isle of Wight community. They support and care for adults living with and dying from a life-limiting illness and they are looking at how they can extend these services to children by 2015.

We appreciate the phenomenal support for Sophie and her family from the Community on the Isle of Wight and the wider support we have received. We would now like to raise funds together with the Earl Mountbatten Hospice, to create an Island based solution that would support children on the Isle of Wight with life limiting conditions and provide end of life care.

The severity of Sophie’s rare condition means that in the interim, a space may be needed to support Sophie and her family in her final days.

KissyPuppy is raising money for the Earl Mountbatten Hospice. This could go towards things like transforming a space into a child friendly residence that would bridge the gap whilst new long term services are developed on the Isle of Wight.

Donations would be very much appreciated and we thank you for your continued support.

www.justgiving.com/EMH-KissyPuppy

The Vine Inn tonight in aid of Sophie Rolf

My name is Jim O’Connor and am friends with Sophie’s Aunt Julie. Last week I was talking with friends about Movember, Children in Need and my beard. Basically various people wanted me to shave it off for these charities. Being a biker with rather a long beard, I wasn’t going to shave it off because someone told me to. I’ll do it when I want. You get the picture. I then heard about Sophie and without any hesitation, said that’ll do for me. Up shot of it is that on Friday 7th Dec. at The Vine Inn, St. Helens there will a shave off and waxing in aid of Sofie during the bands interval at about 10.00 ish. I’m having the beard off and so far a coulple of locals are down for a waxing. Should be a good turnout cos The Maxwells are playing and they usually draw a crowd.

As far as organising it is concerned alot of it is down to Abi. She’s been here there and everywhere getting raffle prizes from local businesses and getting people to sign up for the waxings. Should be a good night with The Maxwells playing as well. They can drown out the screams from the waxings.

So get yourself down to Vine Inn tonight at 7pm

The Vine Inn
St Helens

from 7pm

have a great night

Zen Hair & Beauty Christmas shopping and wrapping in aid of Sophie Rolf

Let Zen Hair & Beauty take the headache out of your Christmas shopping and wrapping this year. Solve all your gift problems at Zen’s Christmas shopping evening all in aid of little Sophie Rolf.

Join us on:

Wednesday 7th November between 5pm – 8pm
Free Mulled Wine, Mince Pies, Shortbread, Cinnamon Coffee

Enjoy a festive bite and a glass of something nice whilst you browse our extensive range of fantastic gifts. Something for everyone guaranteed.

1 night only offers – with up to 60% off.
Shop and be rewarded – earn free gift vouchers.
Some freebies and 3 for 2 on certain items.
Save £’s on “must have” Christmas treatments, with our book and pay in advance offer.

We will also be offering a gift wrapping service and Raffle – chance to win some great gifts, services or treatments. The profits from which will go towards The KissyPuppy Charity.

Ask your therapist for more details………

Until very recently Sophie Rolf was a happy go lucky little 4 year old girl living on theIsle of Wightwith not a care in the world.

During May 2012 a Sophie ‘s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has brain cancer.

Sophie has an aggressive brain tumour and was set a course of radiotherapy, chemotherapy and was accepted on a drug trial within weeks of diagnosis. Sophie has recently has another MRI scan and although still inoperable the tumour was responding to the treatment and had shrunk by around 38%.

We have set up KissyPuppy as a mechanism to fund raise for Sophie. The money raised will be used to support Sophie’s journey through this and to ensure Sophie and her family get as many magical experiences as possible.